Here are links to some professional and support sites I have come
across that may be of help to heart patients and their families; you, of
course, must be the final judge of their accuracy and usefulness. If
you know of others you'd like me to add, please
e-mail G. Wayne Miller.
Special Heart Links:
- The Children's Health Information Network, created by Mona Barmash, mother of a child with complex
heart defects. Describes itself as ``one of only a
handful of consumer information and support resources for
pediatrics currently available on the Internet that has a
commitment to accuracy and reliability, the guidance and
assistance of health professionals, and the active participation
of our intended audience.'' An excellent site -- and excellent people.
- The American Heart Association.
- The Society of Thoracic Surgeons, professional organization of leading cardiac surgeons.
- The American College of Cardiology, professional organization of leading cardiologists.
- Cardiothoracic Surgery Network, geared to professionals, has a national surgeon-search function that patients and parents can use.
- Dr. Koop dot.com, one of the best medical sites on the Web, built on the reputation of the former surgeon general.
- WebMD dot.com, similar to Dr. Koop's site.
- Medscape, a comprehensive, timely, and sophisticated all-around medical resource.
- Kids With Heart, ``providing support, education, and information for families
of children with congenital heart defects and acquired heart disease.''
- Children's Heart Society, a support group based in Alberta, Canada.
- Baby Hearts Press, resources and publications, based in Florida.
- The Adult Congenital Heart Association (ACHA), ``a national organization for adults, and
adolescents, with congenital heart disease (CHD).''
- The Grown Up Congenital Heart Patients Association (GUCH), based in England, with a wealth of resources for the worldwide heart community.
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